higher lows and highs

Well we seem to be rounding the final curve in all this.  We spent last week in Taos working and getting some rest from everything.  Don was able to get more quiet naps in the afternoon and we were also able to get out a bit as well.  But we kept things low key.  I think we are seeing the results of that this week.  Don has increased energy, at least when he needs it.

So the next step is to get back into regular food - I guess dispite the burning and bad taste.  Doesn't sound so appealing. But it is improving.  Pretty soon he'll be back on the spagetti and meatballs....

First dr followup appointment

We had our first dr appt since all the procedures ended and Don passed with flying colors.  The dr said everything looks great and he even graduated him from once a month to every two months!  His job now is to move off the feeding tube and start eating.  The dr said it is like having a sunburn in his throat and tha's why its sore.  So we are really excited that it is going so well.  Don says his goal is to be able to eat my spagetti and meatballs.  I'm ready to cook whenever he is ready to eat!

great weekend

this past weekend was really a good one for Don.  He had much more energy and was feeling pretty good.  He needed less napping than usual. He was really excited about feeling good.  One thing about being sick is that when you start to feel better you really appreciate it.  We had Easter dinner out with some of our friends (Chinese buffet if you can believe it!) and we really enjoyed ourselves.  I can see that when he is with people he perks up instead of hiding out in the house feeling lousey.

Today he's moving a little more slowly but still in pretty good shape.  I imagine that things will still be up and down for awhile, but its good to see him getting optimistic about it all.  I guess it's pretty hard to think positively when you are feeling so sick.  so we are on the road to recovery and a little bit farther down that road.